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Girl With Rare Disease Can't Feel Pain (very interesting)


Lady Jedi

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Posted

Sure sounds sweet at first, but that'd really suck to have half your bones broken, or be on the verge of passing out from heat, and not even know it...

 

Would come in handy sometimes though...

Posted

Ive heard of this once before, it's really interesting. Didnt think of all that stuff with the chili and everything.

 

It would suck to me to have it. It would be better if you didnt have it till you were like 8, then it gets triggered somehow. Because then youd know what pain is for and what it's like, and youd know when to stop.

 

 

 

*wishes he could kill his itching gene* :D

Posted

I remember reading about a child in Africa with the same disorder some years ago... Terrible thing, to be born without a sense of pain. It lets you know you're alive.

 

I suppose if she makes it out of childhood alive and undamaged, she's got a good chance to live a fairly fruitful, normal life. Childhood must be a horribly hazardous time for those with this problem.

Posted

It's definitely childhood in which this disease will have the most effect. As you get older, you realize that some things you do, though you don't 'feel' it, are bad for your body. When this happens, you begin to try avoiding these things... when you're still a child, all you care about is having fun and being curious... dangerous combination with something like this.

 

Gosh, I'm glad I don't have that!

Posted
Originally posted by Sabretooth

Interesting... I'm sure that with a bit of research, scientists may unearth some sort of a new painkiller or something...

 

I shouldn't think so, form what was said it seems the pain nerve cells just don't form, you can't really use that to block a headach.

 

thats really quite sad, here have been occasions when I have whished to be without pain but like everyone says it is there for a reason, if I had not been screeming in pain as a little kid my parents probably wouldn't have taken me to hospital when I fractured my arm, and there is no doubt the injury would have been made a lot worse by using it.

Posted
Originally posted by jon_hill987

I shouldn't think so, form what was said it seems the pain nerve cells just don't form, you can't really use that to block a headach.

 

Maybe this painkiller can wipe out those nerve cells and as it wears out, it builds newer ones. Risky and nightmarish, but perhaps possible.

Posted

there are a lot of little things you don't realise you need pain for... i would have thought of things like touching hot stoves, but not things like chewing your lips in your sleep, or chewing the flesh off your thumb when you are a baby....

 

she needs some form of second skin... like a human equivilent of an ipod skin... that give off a sound or smell when ripped or burnt. That can't be too hard to work out...

Posted

I used to know someone with a problem very much like the one you described.

 

Kind of sad, whenever her boyfriend hugged her, or kissed her anywhere but on her lips, she wouldn't know.

Posted
Originally posted by GothiX

I used to know someone with a problem very much like the one you described.

 

Kind of sad, whenever her boyfriend hugged her, or kissed her anywhere but on her lips, she wouldn't know.

 

she would. it's just pain she can't sense.

Posted
Originally posted by Sabretooth

she would. it's just pain she can't sense.

As Jon_hill said, I'm not talking about the case in the link. She barely had ANY feeling anymore.. Odd that she had a great balance though.

Posted

OMG... Girl of steel??? :eek:

 

Check to see if she looks like Obi :p

 

 

Pain is something you have to experience as a child. She is going to go through hell just trying to survive the next few years.

 

*sigh*

 

Makes you take a look at what is really important, doesn't it?

Posted

Wouldn't reprucing like...not work?

 

Anywho. I think the James Bond Film The World Is Not Enough 's villain's disorder was cooler. He could feel everything except extreme pain. Hot, cold, milkd pain such as a scrape or bruise. Just not...bullets.

Posted

That's not true, the Bond Villain couldn't feel ANYTHING. Remember the thing with the Ice cubes?

 

 

Pain is very related to the sense of touch, it's our nerves that tell us when we're touching things, and pain is just stronger signals sent by our nerves.

 

I would think if she were unable to feel pain she wouldn't feel much of anything.

Posted
Ashlyn can feel the texture of nickels and dimes she sorts into piles on her bedroom floor, the heft of the pink backpack she totes to school and the embrace of a hug. She feels hunger cravings for her favorite after-school snack, pickles and strawberry milk. That’s because the genetic mutation that causes CIPA only disrupts the development of the small nerve fibers that carry sensations of pain, heat and cold to the brain.

 

 

It says it's only pain that she can't feel. That's gotta be rough on her folks. Just imagine all of the times you were told not to do something because it would hurt you. She wouldn't even be able to grasp that concept. :( I hope she lives a long happy life.

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